Check back here regularly to find out what's going on at The Pam Britton Trust for Dementia.
On a group activity basis, our frustration is eased a little as slowly the local support groups are opening again to face to face sessions across the wider Warwick area network. We have produced and started distributing Version 7 of The Little Pocket Book of Support, covering all groups in the area, as a Carer if you haven't got a copy yet please contact us and we will send one in the Post. We are very happy to take calls and are also keeping in touch with various attendees and group leaders, renewing interaction, activities, community and respite now the weeks of isolation have eased. The Group Network too is again active and here are some contact numbers for Carers and family members for advice and support;
-Admiral Nurse, (Dementia UK) 0800 888 6678
-Dementia Connect, 0333 150 3456
-Care Companion, www.carecompanion.org.uk
As the Trust enters its seventh year and we reflect on its work over the period, we are left with mixed feelings as to what has been achieved and what could have been better.
Regarding community support groups, we have helped support four new ones across the wider Warwick district and they are all doing well, they offer Carers and their loved one a wide variety of choice relating to their chosen theme, it might be based on music, craft activities, table games, just a cuppa & natter or a combination of these, they seem to have evolved depending on their attendees. Many however now go to a selection over any given month, giving respite and distraction for both parties involved in a dementia journey, and this was our intent when developing and producing the first ‘Little Pocket Book of Support’ in late 2017. Now in its 7th edition with an ever increasing circulation and with each print run of 1000 copies. It has proved very useful to Carers and families, particularly those newly through the diagnosis process.
We are also very pleased to have initiated and funded an annual Dementia Conference in the area to showcase Health and Community resources available around Dementia. The three events to date have proved very successful, with Carers being able to take their time with the professionals whilst their loved one is well cared for and entertained. One of the spin offs it that the professionals attending also get a chance to network and learn, which they tell us has been really helpful for them too. Another outcome has been the growth of our ‘Network’ of local support Groups meeting 3 times a year, the prime aim being the sharing of knowledge and resources, along with benefiting from learning about the latest developments in dementia care.
Follow this link to an audio interview with Martina Zimmermann, author of
The Poetics and Politics of Alzheimer's Disease Life-Writing, as presented at the
Dementia and Cultural Narrative Network workshop in London on the 23rd. November 2018
Audio Interview with Martina Zimmermann: Dementia Blog December 2018.
One of our new focus areas is in providing access to those Carers who need it, bespoke Advocacy Services. Where those living with Dementia and their Carers are not getting what they are entitled to, either in Care support or financial entitlements, then we can direct them to a source of help, and fund this professional support if appropriate too.
Find out how by contacting us at:
The Pam Britton Trust for Dementia
Registered Charity no. 1159848
53 Cubbington Road
Tel: +44 7867 698073
E-mail: Contact E-mail
Or use our online contact form.
We are looking to welcome more volunteers for our new goups, in Lillington and Warwick, if you can spare a few hours per month we would love to meet you to talk about how you might help.